Marching off to grade 9! http://t.co/StoXtGdWAZ June 26th, 11:08 pm
I conducted a fascinating interview with Marjorie, a professional caregiver. Watch on my video blog: http://t.co/awcBwudfrW June 25th, 12:31 pm
RT @ShankerRuby: DrErmine: Your spirit may attract or repulse others.Spirituality is how we work with our energies to approach the unknown/… May 30th, 5:01 pm
@SnehaAbraham04 thanks! Appreciate the msg :) May 30th, 2:16 am
@ShankerRuby thanks! May 29th, 6:32 pm
#cbs14 George Webster (quoting someone, not sure who!) "Philosophy makes no progress" May 29th, 6:28 pm
#cbs14 George Webster: certainty is as perilous as uncertainty May 29th, 6:24 pm
#cbs14 George Webster: test of value of clinical bioethics arises when things go awry May 29th, 6:22 pm
#cbs14 Dr Kenny - "Bioethics has become largely procedural". A keen observation. May 29th, 4:27 pm
Airport A&W breakfast sandwiches are not as delicious as gas station A&W breakfast sandwiches. May 27th, 2:33 pm
@markfromslap I was googling Margaret Somerville (don't ask) and stumbled on your blog. Great work. But even more awesome unicorn banner. May 24th, 11:55 pm
Blog post: We're now programmed to self-destruct. More fun with Foucault! http://t.co/3UvRqccydH May 21st, 5:45 pm
Blog post: useful quote found while researching for the upcoming Canadian Bioethics Society conference http://t.co/Q3DsSWV7mM May 13th, 11:13 am
RT @StAmantMB: Celebrate Mother's Day with 2 authentic reads: Mother of the Year and Other Elusive Awards & No Ordinary Boy by Kalyn Falk &… May 12th, 11:21 am
In a session with Janet Klees from Deohaeko - such simple concepts, why does it feel revolutionary? #CCDDA May 7th, 6:43 pm
Discussion in lack of services for first nations families dealing with disabilities. Whole different world from the privileged city. #CCDDA May 7th, 4:52 pm
Custom M&Ms swag! http://t.co/vTMpOCgbat May 7th, 12:23 am
@StoryRevamp kind of you to say! A bit nervous but excited. Will pretend you're in the audience :) May 7th, 12:16 am
@Shawndoyle no, sadly. Not like at the swimming pool. At all. May 6th, 5:00 pm
Have you ever refused an airport security scan and demanded a public pat-down instead? Would seriously consider it if I wasn't so chicken. May 6th, 4:01 pm
Jennifer Johannesen is a speaker, author, blogger and patient advocate whose main themes include the challenges and ethics of substitute decision-making in healthcare. Her expertise was earned through experience: her 12 year old son, Owen, passed away in October 2010 after a lifetime of undiagnosed, severe multiple disabilities.
Jennifer speaks to large and small audiences comprised of healthcare and education professionals, parents of children with disabilities and patient groups. Her engagements include numerous talks for The Hospital for Sick Children, the University of Toronto and Holland Bloorview Kids Rehabilitation Hospital.
Her blog and book are available at NoOrdinaryBoy.com.
Twelve-year-old Owen Turney died on October 24th, 2010, of unknown causes. No Ordinary Boy: The Life and Death of Owen Turney is Jennifer Johannesen’s extraordinary story of her profoundly disabled son, his family, his caregivers and his doctors. It is a sharply evocative, sometimes humorous, never sentimental chronicle—not only of perpetual crisis management, crushing disappointments and dashed hopes, but also one of love, spiritual growth, self-understanding, acceptance and maturity.
Low to the Ground Consulting provides low cost, high value marketing, website and social media solutions for small businesses, entrepreneurs and services professionals.
"...a balanced, sometimes difficult, often amusing account of a real young man told, with an almost unbiased honesty, by the one woman who knew him best. Jennifer avoids the kind of finger-waving judgment calls writers with less skill tend to saddle on the ignorant, the curious and the well-meaning. Her observations are that of a young woman who lives in a world of contradictions, complications and revelations, including her own."
"No Ordinary Boy is a must read for all health professionals. It reminds us why we do what we do—and inspires us to do better."
"...found it moving and inspirational. It may offer support and a new perspective for parents and doctors dealing with these especially vulnerable children. It was penned by a courageous and yet forthright mother who wants to help others learn the lessons that Owen’s short life, offered."
No Ordinary Boy author Jennifer Johannesen talks about society’s expectations for constant improvement, how this plays into therapy for children with disabilities, and how families can be left shouldering more burden than they want or can handle. Jennifer explores how institutions, clinicians and parents alike contribute to the increasing pressures placed on families and shares her experiences as she leads a discussion on ways to redefine ‘success.’
The over-administration of the lives of families with children with special needs not only threatens to completely snow them under with paperwork, but also creates an unnecessarily stressful environment of constant monitoring, surveillance, reporting, and goal-setting. Jennifer presents theories as to why these conditions exist and shares how she opted for an alternate route for her family.
Ethics are often seen as an instrument to remedy conflict, but are in fact at play in every healthcare decision made in the pediatric healthcare setting. Jennifer discusses how all decision-makers and advisors, parents and clinicians alike, ought to consider more than just the clinical outcomes when making decisions - they should also identify personal motivations, family and cultural influences and other environmental factors--all lenses through which we filter and distort information.
Jennifer often speaks to new and experienced professionals in orientation, lunch-and-learn and professional development settings. Her 'Patient Perspective' talks are geared to the specific audience and healthcare or therapy-related discipline. Themes include experiences in healthcare settings, receiving bad news, communication styles and decision-making.