I like the idea of treating dr. appt like a business meeting: be prepared http://t.co/uY5prHCxPN September 11th, 9:01 pm
Low to the Ground will now be tweeting separately... words of wisdom, helpful WP tips, newsy bits - come join the fun! @lttgconsulting September 3rd, 4:07 pm
blog post about disability parenting burn out, and uncovering the real problem - http://t.co/vionAkO43P August 23rd, 12:35 pm
blog post : http://t.co/d4d3UJ3C09 July 14th, 10:15 pm
@carstenknoch Replace the patty, not the party :). Never replace the party. April 15th, 11:40 am
blog post: "On death, change and choices. And, back to school!" http://t.co/DK6Lbf3fM4 March 29th, 3:25 pm
@TablePress awesome thanks! and thanks for the quick reply... February 27th, 9:38 pm
blog post:"A dilemma for sonographers, and considering the greater good" http://t.co/NfBJBZALKz February 27th, 5:36 pm
@TablePress Hey there - quick Q- Possible to sort on hidden values, like for Days of the Week....? February 27th, 5:31 pm
blog post: “Bias and influence in decision-making”, Genetics rounds http://t.co/zisCEPJX February 4th, 12:21 pm
@SFdirewolf thanks for the retweet! January 23rd, 4:24 am
blog post: My article in the latest Ars Medica journal: “Do Not Resuscitate” http://t.co/k62yxcTv January 18th, 2:32 pm
blog post: Newtown and me http://t.co/ReYUw8M1 December 27th, 3:13 pm
blog post: An excerpt from my latest writing project, this is a chapter intro called “Decision-making” http://t.co/MQdxCIdK December 21st, 4:10 pm
blog post: What Owen doesn’t know http://t.co/gaeuRmYS December 10th, 2:00 pm
blog post: Death is hardest for those left behind http://t.co/EfCgAo3C November 1st, 3:46 pm
@SFdirewolf totally agree. did say so- "teens and adults who survive their parent's decisions" obviously too cryptic! Will correct. Thanks! October 21st, 12:18 pm
oh wait. never mind. both urls work. i'm so confused. October 20th, 2:55 pm
New blog post about Ethics of Fetal Intervention: http://t.co/rsBlhZVt (ignore last url if you got that tweet i just deleted?!) October 20th, 2:54 pm
@AustinKVS Kristen - thanks for sharing the article! So pleased to see it resonate... October 11th, 3:56 am
@SFdirewolf Thanks Alice! September 28th, 12:33 pm
blog post: Dismantling ‘Team Owen’ – http://t.co/dplKQnzJ September 27th, 3:03 pm
blog post: Abilities Magazine passes on my best writing yet http://t.co/rUv8hHjS September 27th, 11:47 am
blog post: Summer is over http://t.co/AylOM6k4 September 22nd, 11:17 pm
blog post: Los Angeles, 2012 http://t.co/N4Uo2fxZ August 27th, 11:51 am
@FanExpoCanada never mind, can access finally August 1st, 6:01 pm
@FanExpoCanada website down? my son wants to know the cost of the tickets! can u reply with $? August 1st, 5:59 pm
@SFdirewolf Hey Alice - thanks for initiating this idea. I have added SF to my CA visit itinerary. We'll see! Appreciate the support :) July 20th, 2:53 pm
Jennifer Johannesen is a speaker, author, blogger and patient advocate whose main themes include the challenges and ethics of substitute decision-making in healthcare. Her expertise was earned through experience: her 12 year old son, Owen, passed away in October 2010 after a lifetime of undiagnosed, severe multiple disabilities.
Jennifer speaks to large and small audiences comprised of healthcare and education professionals, parents of children with disabilities and patient groups. Her engagements include numerous talks for The Hospital for Sick Children, the University of Toronto and Holland Bloorview Kids Rehabilitation Hospital.
Her blog and book are available at NoOrdinaryBoy.com.
Twelve-year-old Owen Turney died on October 24th, 2010, of unknown causes. No Ordinary Boy: The Life and Death of Owen Turney is Jennifer Johannesen’s extraordinary story of her profoundly disabled son, his family, his caregivers and his doctors. It is a sharply evocative, sometimes humorous, never sentimental chronicle—not only of perpetual crisis management, crushing disappointments and dashed hopes, but also one of love, spiritual growth, self-understanding, acceptance and maturity.
Low to the Ground Consulting provides low cost, high value marketing, website and social media solutions for small businesses, entrepreneurs and services professionals.
"...a balanced, sometimes difficult, often amusing account of a real young man told, with an almost unbiased honesty, by the one woman who knew him best. Jennifer avoids the kind of finger-waving judgment calls writers with less skill tend to saddle on the ignorant, the curious and the well-meaning. Her observations are that of a young woman who lives in a world of contradictions, complications and revelations, including her own."
"No Ordinary Boy is a must read for all health professionals. It reminds us why we do what we do—and inspires us to do better."
"...found it moving and inspirational. It may offer support and a new perspective for parents and doctors dealing with these especially vulnerable children. It was penned by a courageous and yet forthright mother who wants to help others learn the lessons that Owen’s short life, offered."
No Ordinary Boy author Jennifer Johannesen talks about society’s expectations for constant improvement, how this plays into therapy for children with disabilities, and how families can be left shouldering more burden than they want or can handle. Jennifer explores how institutions, clinicians and parents alike contribute to the increasing pressures placed on families and shares her experiences as she leads a discussion on ways to redefine ‘success.’
The over-administration of the lives of families with children with special needs not only threatens to completely snow them under with paperwork, but also creates an unnecessarily stressful environment of constant monitoring, surveillance, reporting, and goal-setting. Jennifer presents theories as to why these conditions exist and shares how she opted for an alternate route for her family.
Ethics are often seen as an instrument to remedy conflict, but are in fact at play in every healthcare decision made in the pediatric healthcare setting. Jennifer discusses how all decision-makers and advisors, parents and clinicians alike, ought to consider more than just the clinical outcomes when making decisions - they should also identify personal motivations, family and cultural influences and other environmental factors--all lenses through which we filter and distort information.
Jennifer often speaks to new and experienced professionals in orientation, lunch-and-learn and professional development settings. Her 'Patient Perspective' talks are geared to the specific audience and healthcare or therapy-related discipline. Themes include experiences in healthcare settings, receiving bad news, communication styles and decision-making.