Jack Whelan

Research Advocate - Event Speaker Jack-Whelan.com

  • Andover MA

Inspire audience: see Clinical Trials as safe & effective treatment option vs conventional chemo as we travel road to Personalized Medicine

Contact

Media

Social

Biography

Jack lives in Andover MA with his wife Jan, has three ‘fabulous’ daughters and sons-in-law and proud grandparents of twin girls. Jack’s is the principal of a small business focused on Information Technology (IT) investment research coming from industry as a career Sales VP. Diagnosed in 2007 with an active Waldenstrom’s Macroglobulinemia a rare lymphoplasmacytic lymphoma for which there is no cure yet, Jack has participated in four Clinical Trials at Dana Farber Cancer Institute, (DFCI) the most recent, a novel targeting biologic agent has worked nicely. He is also treated at Brigham & Women’s Hospital (BWH).

Jack has first hand experience with many aspects of Clinical Trials and has had a front row seat traveling the road to Personalized Medicine which is still under construction. Jack encourages all patients to explore what treatment options might be available in Clinical Trials as we begin to benefit from the promise of personalized medicine, genomics-based therapy giving patients the right medication in the right dose at the right time.

During treatment at DFCI and BWH over the past six years, Jack has developed close professional and personal relationships with these physicians, nurses and medical pros. He volunteers with the Leukemia & Lymphoma Society (LLS) as event speaker helping recruit for Team in Training and Light the Night and has presented at local LLS’ support groups. He’s a legislative advocate volunteer for LLS, recently helped convince state lawmakers to pass the much-needed Oral Chemotherapy Parity bill; now advocating for Biosimilar clarification, Step Therapy and Specialty Tiers resolution. He regularly participates in lobbying efforts and testifies at the state house, wrote stories for Massachusetts newspapers, conducted email and phone call campaigns to state senators and representatives. See his story in Cancer Today Magazine www.tinyurl.com/CT-Whelan

He’s a member of the American Association of Cancer Research (AACR) completed this year’s Scientist-Survivor Program. He is also active with the American Society of Clinical Oncology (ASCO) and completed the Research Advocacy Network Focus on Research Scholars in conjunction with the ASCO 2013 Conference. As an e-Patient with a busy 2013 calendar, you may find Jack speaking at advocacy, healthcare, medical education and similar events around the United States.

Industry Expertise

Pharmaceuticals
Biotechnology
Health Care - Services

Areas of Expertise

Clinical Trials Personalized Medicine
Genomics Based Therapy
Novel Molecular Targeting Agents to Treat Rare Incurable Cancer

Accomplishments

United States Navy Veteran

Served four years active duty in the United States Navy, expertise in Information Technology, Radar Systems, Fire Control Systems and Navy Tactical Data Systems.

AACR Scientist Survivor Program

Completed Patient/Research Advocate 2013 Scientist-Survivor Program in connection with American Association for Cancer Research Patient Advocacy programs.

Research Advocate Network Institute Research Advocate Program 2013 with ASCO

Completed Research Advocacy Network Institute Research Advocate program in conjunction with American Association of Clinical Oncology patient advocacy programs. The Institute helps equip advocates with the tools and resources they need to comprehend research studies and communicate effectively with patients, researchers and one another.

The Research Advocacy Network’s overall goal is to channel advocates’ passion into effective interactions with the research community.

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Education

University of Rhode Island

BS

Business Administration & Marketing

Affiliations

  • American Association for Cancer Research (AACR)
  • American Society for Clinical Oncology (ASCO)
  • Drug Information Association (DIA)
  • Leukemia & Lymphoma Society (LLS)
  • International Waldenstrom's Macroglobulinemia Foundation
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Testimonials

Research Advocate

http://www.Jack-Whelan.com

Jack-Whelan.com

Testimonial and references are available upon request

Event Appearances

Breakfast Keynote - Unique Patient Perspective of Personalized Medicine in Practice

4th Annual World Companion Diagnostics (CDx) Conference  Collonnade Hotel Boston, MA USA

2013-11-13

e-Patient Perspective benefits of Clinical Trials to achieve Progression Free Survival

Press Conference sponsored by PhRMA and Chamber of Conference - Clinical Trial in Massachusetts  University of Massachusetts Medical Center

2013-11-12

Personalized Medicine in Practice - From Diagnosis to Advocacy - Patient Perspectives Luncheon Speaker

PhRMA sponsored meeting of advocates, marketing firms, lobbyists  University of Massachusetts Business Club, Boston

2013-11-14

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Sample Talks

Clinical Trials, Personalized Medicine, Precision Medicine, Molecular Novel Therapies, Blood Cancers

Jack prepares a custom, well-researched presentation for your event that is meaningful and relevant for your audience. As a six year survivor of a rare incurable blood cancer, Jack shares is unique patient perspective with real world experience participating in five clinical trials and variety of therapies, research and care. Jack is a career research analyst in Information Technology making the transition to an effective research advocate for cancer research and care. Fun, helpful, hopeful!

Style

Availability

  • Keynote
  • Moderator
  • Panelist
  • Workshop Leader
  • Host/MC

Fees

$0 to $6000*Will consider certain engagements for no fee