Evaluating the Impact of Facebook's Ban on Vaccine Misinformation

Feb 22, 2021

2 min

A new Facebook policy has banned misinformation about all vaccines on its platform. Villanova University professor Jie Xu, PhD, who specializes in science and health communication, examined this decision.


"On one hand, there clearly is a lot of mis/disinformation on social media regarding vaccines; some of them are simply uninformed and, of course, harmful to public health," said Dr. Xu. "On the other hand, many details relating to the COVID-19 vaccine, in my view, are still open to scientific debate."


So, what determines what is labelled misinformation? Dr. Xu believes this is a complicated determination.


"Science itself is evolving with falsification and revision to previous claims when new evidence comes in," Dr. Xu noted. "Who is to say that some claims deemed true at this moment won't be overturned in the future? What are the standards to be used in defining what is true information or misinformation? And perhaps more importantly, who are the 'fact-checkers' that are considered trustworthy to the majority of Americans?"


However, there are some benefits to Facebook's decision.


"On a more positive note, there is some preliminary evidence indicating that labeling misinformation on social media may help to alleviate the negative influence of vaccine misinformation claims," Dr. Xu said. "The challenge is that the people that are most susceptible to misinformation, and those that health professionals really want to reach out to, are the ones that have the least level of trust on this type of intervention. In some corners, this will likely to be viewed as violation to free speech and perhaps backfire."


How does Facebook's banning align with free speech?


"My understanding of free speech is that it's not that we don't pay a price for it—unless it's inciting violence, most information has been allowed to flow relatively freely—but it's that the alternative could be much worse," said Dr. Xu. "At the end of the day, we need to create an environment in which honest, open and critical conversations are welcomed, and we do need each other to find the truth."


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3 min

A Century and a Half of Connectivity: Professor Mojtaba Vaezi Reflects on the Evolution and Future of Communication Technology

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4 min

Strategic Closure of Strait of Hormuz Puts Pressure on US, Threatens Global Oil Trade Stability

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5 min

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The use of that data for scientific purposes—even ones that turn a profit— is not problematic in itself, says Professor Rutschman. “Some people may even choose a company that allows scientific research over one that doesn’t. Many people may not care, but some will. The uses are not common knowledge, and that is worrisome. The public should be well-informed about what’s happening.” Deeper problems may arise when they aren’t informed of those potential uses of their data. Professor Rutschman cited the infamous Henrietta Lacks case, in which Lacks’ cells were, and continue to be, one of the most valuable cell lines in cancer research. Neither Lacks nor her family were paid for the widespread use of her genetic material until a settlement was reached long after her death. “When you have biologics involved, a concern is that if you have something potentially valuable, you may not see any money from it.” Bankruptcy Can Cause Policy Upheaval To understand the role bankruptcy can play in all of this, one needs to refer back to the power of individual company policy in this space. There are no external laws that dictate how these companies can further monetize their data, says Professor Rutschman, as long as they don’t violate other laws, such as privacy laws. That means that when a company like 23andMe goes bankrupt, as was the case in 2025, new ownership could enact completely different corporate policies for use of their property. In their specific case, the company was essentially bought back by 23andMe founder and CEO Anne Wojcicki’s non-profit, all but ensuring policies would remain the same. But that is exactly why Professor Rutschman and others are highlighting this specific case. “Bankruptcy is bad in the sense that there's a lot of uncertainty,” she said. “In this instance, the person coming in was the person who was there before, so the policy is likely to continue. But that's very rare. There are a roster of companies with access to biological materials. 23andMe is a good example of something not going horribly wrong, but with the understanding that it absolutely could.” Ways in which that could happen could be new ownership undermining the original intent of the data use by cessation of the company’s previous policies, or charging exorbitant prices to other entities to use that data for scientific research. “Because there is no law, these new owners can essentially do as they please with their proprietary data, unless they do something incredibly careless that amounts to the level of illegal,” Professor Rutschman said. “And that is concerning.” Onus Falls to Companies to Enact Safeguards To ensure a worst-case scenario for such companies does not unfold in a bankruptcy situation, Professor Rutschman points to a number of safeguards they could enact to protect their original commitments, ensure equitable access to data for scientific research and promote fair trade. One of which is implementing a company policy stating that commitments from a previous iteration of the company need to be honored if ownership is transferred. Those could include, as the authors recommend, policies “honoring original research-oriented commitments under which the data were collected,” as well as not “enclosing the dataset for exclusive commercial use.” She also highlights the need for Fair, Reasonable, and Non-Discriminatory (FRAND) voluntary licensing commitments, which are inherently more science and market friendly. “Companies in many sectors have committed to this approach, and we are saying it should apply in this space as well. You’ll charge your royalty, but it can’t be a billion dollars for a data set, nor would it be done by exclusively selling to one entity. You can get that billion dollars by selling to 15, 50 or 100 companies, and from a scientific research perspective, that’s what we want. Otherwise, you have a monopoly or duopoly. “There are a lot of different models that can be used, but ultimately what we are arguing is leaving this unaddressed is a really bad idea. It leaves everything exposed, and something bad is more likely to happen.”

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