University Alliance is an association of British universities which was formed in 2006 as the Alliance of Non-Aligned Universities, adopting its current name in 2007.

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Pioneering Nurse Award

2017

European Association of Palliative Care

Postdoctoral Research Award

Award in First Line Management

Journal of Applied Research in Intellectual Disabilities : Editorial Board Member

British Journal of Learning Disabilities : Editorial Board Member

Shared decision‐making with people with intellectual disabilities in the last phase of life: A scoping review

Developing a training course to teach research skills to people with learning disabilities: “It gives us a voice. We CAN be researchers!”

Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey

Communicating about death and dying with adults with intellectual disabilities who are terminally ill or bereaved: A UK‐wide survey of intellectual disability support staff

Death and Dying

How to Break Bad News to People with Intellectual Disabilities: A Guide for Carers and Professionals

Living with Learning Disabilities, Dying with Cancer: Thirteen Personal Stories

Professor Irene Tuffrey-Wijne is Professor of Intellectual Disability and Palliative Care in the  Centre for Health and Social Care Research at Kingston University. Her research explores end of life care for people with learning disabilities and issues such as facing death and coping with the loss of others. Current projects include future-planning to support older people with learning disabilities who live at home and an international study on the nature of palliative palliative care for those with intellectual disabilities. Irene chaired the  Palliative Care for People with Learning Disabilities Network  (helping practitioners to learn from each other) and chaired the judges for an annual  award for excellence  in end of life care provision for people with intellectual disabilities.

Irene also chaired the European Association for Palliative Care (EAPC) Taskforce on Intellectual Disabilities. The Taskforce aims to build on international collaboration to advance knowledge and practice. She has written several books including How to break bad news to people with intellectual disabilities: a guide for carers and professionals and Living with learning disabilities, dying with cancer: thirteen personal stories. She has also written a series of pictorial guides to support people with intellectual disabilities (and their families and carers) during the COVID-19 pandemic. Irene serves on the editorial boards of the Journal of Applied Research in Intellectual Disabilities and the British Journal of Learning Disabilities. In her earlier career she trained and worked as a nurse and worked in a hospice as a Macmillan cancer care nurse.

Bereavement

Palliative Care

People with Learning Disabilities

End of Life Care

Learning Disabilities

Intellectual Disabilities

Coping With Loss

Kingston University London Profile

UBC Press Author Page

Personal Website

ResearchGate Citations

Google Scholar Citations

PCPLD Network Podcasts

People with learning disabilities ‘failed’ by broken healthcare system, says palliative care expert

People with learning disabilities are more likely to die from coronavirus

Higher number of coronavirus deaths in people with learning disabilities highlights need for immediate action

Professor of Intellectual Disability and Palliative Care

Irene Tuffrey-Wijne, Professor in Intellectual Disability & Palliative Care, talks about her road to professorship -- from nursing student in the Netherlands, via the L'Arche Community and Trinity Hospice in London. Why is it important to pay attention to the deaths and bereavements of people with intellectual (learning) disabilities? What can we learn from them, and from their families? And how can we include everyone in a research community?
Introductions by Professor Jenny Higham (Principal, St George's University of London) and Baroness Sheila Hollins (Emeritus Professor of Psychiatry of Disability, St George's University of London), and a word of thanks by Professor Priscilla Harries (Associate Dean of Research, Kingston University & St George's, University of London).

Irene Tuffrey Wijne Inaugural Lecture 9Jan2019

Dr Irene Tuffrey-Wijne (St George's University of London) introduces her new guidelines on how to break bad news to people with intellectual disabilities. www.breakingbadnews.org

How to break bad news to people with intellectual disabilities/introduction

Irene Tuffrey-Wijne, chair of the PCPLD Network (www.pcpld.org), talks about the implications of coronavirus for people with learning disabilities, and the implications for the work of the PCPLD Network

A message from the PCPLD Network in time of Coronavirus

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