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23andMe’s Bankruptcy Exposes Fragility of How Genetic Data is Utilized Beyond Fee-For-Service, Says Villanova Law Professor

When individuals sign up for direct-to-consumer genetic testing, the extent to which they ever think about their genetic data is likely in the context of the service for which they paid: information on predisposition to a genetic illness, or confirmation of an ethnic background, for example. But that data doesn’t just sit on a shelf, and while the most mainstream concern for such services is the privacy of your data, there is also the question of what else the companies do with it, and how. Ana Santos Rutschman, SJD, LLM, professor and faculty director of the Health Innovation Lab at Villanova University Charles Widger School of Law, is particularly interested in the latter. In June 2025, she co-authored an amicus brief centered on data protection and patient’s interests amid genetic testing company 23andMe’s bankruptcy proceedings. In December, many of those same co-authors published a paper in Nature Genetics, highlighting 23andMe’s bankruptcy as “an inflection point for the direct-to-consumer genetics market,” especially as it pertains to the broader corporate use of individuals’ scientific data. The reason? “How that data is used all depends on the policies of the individual companies,” she said. Genetic Testing Companies Use Your Data For More Than The Services You Pay For Those who utilize genetic testing companies—for any reason—are likely also consenting, often unknowingly, to other unrelated items. This includes acknowledgment of information related to how your data might be further used or monetized. “Most people don't think about secondary and tertiary uses of their data,” said Professor Rutschman. “[What they consent to] is displayed on the website somewhere, but it’s not easily understandable and accessible. It’s fine print.” Such companies often operate beyond the traditional “fee for a service” relationship with consumers. Yes, they will give you the information you paid for—finding out whether you have German ancestry or are predisposed to certain genetic disease—but instead of that genetic data just being stored somewhere, it’s often sold for research purposes. Today, in the age of AI big data, that might look something like this: The company puts your data in a box with parameters, along with thousands of others. Perhaps they are then able to observe a pattern that, until all that data was compiled, was previously unknown. They come up with a diagnostic or a medicine and patent it. That patent is licensed to somebody else, and the company makes money on the product. The use of that data for scientific purposes—even ones that turn a profit— is not problematic in itself, says Professor Rutschman. “Some people may even choose a company that allows scientific research over one that doesn’t. Many people may not care, but some will. The uses are not common knowledge, and that is worrisome. The public should be well-informed about what’s happening.” Deeper problems may arise when they aren’t informed of those potential uses of their data. Professor Rutschman cited the infamous Henrietta Lacks case, in which Lacks’ cells were, and continue to be, one of the most valuable cell lines in cancer research. Neither Lacks nor her family were paid for the widespread use of her genetic material until a settlement was reached long after her death. “When you have biologics involved, a concern is that if you have something potentially valuable, you may not see any money from it.” Bankruptcy Can Cause Policy Upheaval To understand the role bankruptcy can play in all of this, one needs to refer back to the power of individual company policy in this space. There are no external laws that dictate how these companies can further monetize their data, says Professor Rutschman, as long as they don’t violate other laws, such as privacy laws. That means that when a company like 23andMe goes bankrupt, as was the case in 2025, new ownership could enact completely different corporate policies for use of their property. In their specific case, the company was essentially bought back by 23andMe founder and CEO Anne Wojcicki’s non-profit, all but ensuring policies would remain the same. But that is exactly why Professor Rutschman and others are highlighting this specific case. “Bankruptcy is bad in the sense that there's a lot of uncertainty,” she said. “In this instance, the person coming in was the person who was there before, so the policy is likely to continue. But that's very rare. There are a roster of companies with access to biological materials. 23andMe is a good example of something not going horribly wrong, but with the understanding that it absolutely could.” Ways in which that could happen could be new ownership undermining the original intent of the data use by cessation of the company’s previous policies, or charging exorbitant prices to other entities to use that data for scientific research. “Because there is no law, these new owners can essentially do as they please with their proprietary data, unless they do something incredibly careless that amounts to the level of illegal,” Professor Rutschman said. “And that is concerning.” Onus Falls to Companies to Enact Safeguards To ensure a worst-case scenario for such companies does not unfold in a bankruptcy situation, Professor Rutschman points to a number of safeguards they could enact to protect their original commitments, ensure equitable access to data for scientific research and promote fair trade. One of which is implementing a company policy stating that commitments from a previous iteration of the company need to be honored if ownership is transferred. Those could include, as the authors recommend, policies “honoring original research-oriented commitments under which the data were collected,” as well as not “enclosing the dataset for exclusive commercial use.” She also highlights the need for Fair, Reasonable, and Non-Discriminatory (FRAND) voluntary licensing commitments, which are inherently more science and market friendly. “Companies in many sectors have committed to this approach, and we are saying it should apply in this space as well. You’ll charge your royalty, but it can’t be a billion dollars for a data set, nor would it be done by exclusively selling to one entity. You can get that billion dollars by selling to 15, 50 or 100 companies, and from a scientific research perspective, that’s what we want. Otherwise, you have a monopoly or duopoly. “There are a lot of different models that can be used, but ultimately what we are arguing is leaving this unaddressed is a really bad idea. It leaves everything exposed, and something bad is more likely to happen.”

Brian Levine, M.D., Named Chief Academic Officer and Intellectual Property Administrator

ChristianaCare announced Feb. 12 the promotion of Brian Levine, M.D., to chief academic officer, along with his appointment as intellectual property administrator. He will also continue in his role as designated institutional official. As chief academic officer and leader of ChristianaCare’s Department of Academic Affairs, Levine oversees 38 residency and fellowship programs encompassing 315 residents and fellows, along with the education and training of students across the continuum of medical education. He leads the continued growth and strengthening of ChristianaCare’s undergraduate and graduate medical education infrastructure, ensuring that ChristianaCare continues to prepare physicians to care for our community well into the future. In addition, Levine oversees physician assistant education and allied health educational programming, supporting workforce development and long-term community health needs. As the largest academic medical center between Philadelphia and Baltimore, ChristianaCare has been a hub of academic excellence for over a century. ChristianaCare is one of the largest community-based teaching hospital systems in the United States. ChristianaCare also serves as the Delaware Branch Campus for Sidney Kimmel Medical College and the Philadelphia College of Osteopathic Medicine. This unique program allows medical students to complete their third and fourth years of clinical rotations exclusively at ChristianaCare, providing a clear pathway to launch their medical careers in Delaware. Each year, 55 students participate in the Branch Campus program, with many continuing into ChristianaCare’s highly sought-after residency programs and remaining in Delaware to serve local communities. ChristianaCare is a destination of choice for medical students and residents because of its strong patient-centered culture, reputation for excellence, and diversity of clinical experiences that include urban and suburban campuses with a wide range of pathologies. In his newly expanded role as intellectual property administrator, Levine manages and enforces ChristianaCare’s intellectual property policy, ensuring fair and consistent application in alignment with applicable laws and regulations. He also leads the multidisciplinary committee responsible for guiding organizational decisions related to intellectual property valuation, commercialization strategies and revenue distribution. Levine brings deep experience in academic medicine, health system education and scholarly publishing to these responsibilities. An emergency physician, he led the development of widely used clinical reference guides published by the Emergency Medicine Residents’ Association. These pocket-sized tools — covering topics such as antibiotic stewardship, orthopedic injury management, and EKG interpretation — are used by thousands of emergency medicine residents worldwide. Levine has held leadership roles at ChristianaCare for nearly two decades. Since 2018, he has served as associate chief academic officer and designated institutional official. Previously, he was program director of the Emergency Medicine Residency program from 2012 to 2018 and associate program director from 2006 to 2012. Levine is a clinical professor of Emergency Medicine at Sidney Kimmel Medical College at Thomas Jefferson University and previously served as associate medical director for the LifeNet aeromedical transport program. He earned his medical degree from the University of Vermont Larner College of Medicine and completed his emergency medicine residency at ChristianaCare.

ChristianaCare Plans to Build Health Campus in Georgetown, Delaware

At a time when there is uncertainty about the future of heath care in the U.S., ChristianaCare is doubling down on its investments to expand access to care in Delaware. As part of $865 million in new investments in Delaware over three years that ChristianaCare announced last July, ChristianaCare today submitted a Notice of Intent to the Delaware Health Resources Board to develop a new health campus in Georgetown. The proposed campus will bring more comprehensive care closer to home for residents of Sussex County, an area experiencing rapid population growth and long-standing gaps in access to essential health services. Designed to Meet the Needs of a Growing Community Similar to ChristianaCare’s West Grove Campus in southern Chester County, Pennsylvania, and its upcoming campuses in Springfield and Aston in Delaware County, the new campus will feature a health center offering primary care, specialty care, behavioral health and other outpatient services and a neighborhood hospital with eight emergency beds and eight inpatient beds. This facility is designed to make it easier for residents to receive timely, high-quality care in their own community. “Sussex county is home to a growing and aging population and is designated by the Health Resources & Services Administration (HRSA) as a Medically Underserved Area,” said Janice E. Nevin, M.D., MPH, president and CEO of ChristianaCare. “This new campus will help close gaps in access by bringing high-quality, equitable and more convenient care directly into the community that needs it most. Our goal is simple: ensure that every Delawarean can access the care they need, in the right place at the right time.” Expanding Access While Strengthening Regional Care This new ChristianaCare campus will add local outpatient care, emergency and inpatient care, creating a closer network of services connecting residents to advanced specialty care at ChristianaCare’s regional hospitals. ChristianaCare is partnering with Emerus Holdings, Inc. with respect to the neighborhood hospital component. Emerus is the nation’s leading developer of this care delivery model, partnering in the operation of more than 45 acute care facilities nationwide. This partnership reflects ChristianaCare’s commitment to bringing nationally recognized, high-quality care to Delaware. “We are proud to continue our partnership with ChristianaCare to bring sustainable, compassionate and high-quality health care to the residents of Sussex County,” said Vic Schmerbeck, CEO of Emerus Holdings Inc. “Together, we are building a next-generation model of care designed around the needs of the community—today and for the future.” The 42,000-square-foot Georgetown campus is expected to open in late 2028. The campus is planned for 20769 DuPont Boulevard in Georgetown. The campus is estimated to cost $65.1 million. Planning for Today’s Demand and Tomorrow’s Growth ChristianaCare already offers a range of services in Sussex County—including primary care, specialty care, virtual care and home health and hospice services. However, Sussex and Kent counties are projected to see an 8% population increase by 2030, with a significant rise in residents age 65 and older. As demand for emergency, primary and specialty care grows, this new campus is designed to make care more local, more connected and more responsive to community needs. In addition, ChristianaCare will continue to explore opportunities to expand access to care in other areas of Delaware, including in Kent County.

Psychologists introduce third path to a ‘good life’ — one full of curiosity and challenge

For centuries, scholars and scientists have defined the “good life” in one of two ways: a life that is rooted in happiness, characterized by positive emotions, or one that is centered on meaning, guided by purpose and personal fulfillment. But what if there is another, equally valuable path — one that prioritizes challenge, change and curiosity? “We found that what was missing was psychological richness — experiences that challenge you, change your perspective and satisfy your curiosity.” — Erin Westgate, Ph.D., assistant professor psychology, director of the Florida Social Cognition and Emotion Lab This third dimension, which may result in a more psychologically rich life for some, is being explored in a new study — led by University of Florida psychologist Erin Westgate, Ph.D., in collaboration with Shigehiro Oishi, Ph.D., of the University of Chicago. According to their research, some people prioritize variety, novelty and intellectually stimulating experiences, even when those experiences are difficult, unpleasant or lack clear meaning. “This idea came from the question: Why do some people feel unfulfilled even when they have happy and meaningful lives?” Westgate said. “We found that what was missing was psychological richness — experiences that challenge you, change your perspective and satisfy your curiosity.” Westgate and Oishi’s research shows that a psychologically rich life is distinct from lives defined by happiness or meaning. While happiness focuses on feeling good, and meaning is about doing good, richness is about thinking deeply and seeing the world differently. And for a significant minority of people around the world, that third path is the one they would choose — even if it means giving up happiness or meaning. A new way to think about the ‘good life’ According to Westgate and Oishi, psychological richness is defined as a life filled with diverse, perspective-changing experiences — whether these are external, such as traveling or undertaking new challenges, or internal, like absorbing powerful books or pieces of music. “A psychologically rich life can come from something as simple as reading a great novel or hearing a haunting song,” Westgate said. “It doesn’t have to be about dramatic events, but it can shift the way you see the world.” Unlike happy or meaningful experiences, rich experiences are not always pleasant or purposeful. “College is a good example. It’s not always fun, and you might not always feel a deep sense of meaning, but it changes how you think,” Westgate said. “The same goes for experiences like living through a hurricane. You wouldn’t call it happy or even meaningful, but it shakes up your perspective.” Researchers in Westgate’s lab at UF have been studying how people respond to events like hurricanes, tracking students’ emotions and reactions as storms approach. The results show that many people have viewed these challenging experiences as psychologically rich — altering how they saw the world, even if they didn’t enjoy them. The roots of the idea While the study is new, the concept has been years in the making. Westgate and Oishi first introduced the term “psychologically rich life” in 2022, building on earlier research and scale development around 2015. Their latest paper expands the idea, showing that the concept resonates with people across cultures and fills a gap in how people define well-being. “In psychology and philosophy, dating back to Aristotle, there’s been a focus on hedonic versus eudaimonic well-being — happiness versus meaning,” Westgate said. “What we’re doing is saying, there’s another path that’s just as important. And for some people, it’s the one they value most.” While many people ideally want all three — happiness, meaning and richness — there are trade-offs. Rich experiences often come at the cost of comfort or clarity. “Interesting experiences aren’t always pleasant experiences,” Westgate said. “But they’re the ones that help us grow and see the world in new ways.” Westgate hopes the study will broaden how psychologists and the public think about what it means to live well. “We’re not saying happiness and meaning aren’t important,” Westgate said. “They are. But we’re also saying don’t forget about richness. Some of the most important experiences in life are the ones that challenge us, that surprise us and that make us see the world differently.”

Parents — Stop Trying to Be Your Teen's BFF

As teenagers push for independence, many parents respond by trying to become their friends and confidants. University of Rochester psychologist Judi Smetana says blurring the line between warmth and authority can backfire. “It’s great if kids want to disclose to you,” Smetana explains. “But it would be weird for parents to talk about their private lives with their kids. When parents start revealing things about themselves, it’s slippery. Your child should not be your confidant.” Smetana, an expert in adolescent development and parent-teen relationships, emphasizes that closeness and trust are essential — but they are not the same as “friendship.” Teenagers need structure, limits, and clear boundaries as they test autonomy. When parents overshare they risk shifting roles in ways that reduce parental influence. That doesn’t mean parent-child relationships remain rigid forever. The dynamics naturally evolve as children mature into early adulthood. “Let the child take the lead,” Smetana says. “There may show a willingness to become more like friends when parents don’t have the same authority. But there will still be some boundaries.” Her research underscores that healthy parent-teen relationships balance openness with guidance. Trust grows not from collapsing boundaries, but from maintaining them with consistency and care. For reporters covering parenting and adolescent behavior, Smetana is available to discuss: • Healthy boundaries in parent-teen relationships • Oversharing and role confusion in families • Adolescent autonomy and authority • How parent-child dynamics shift in early adulthood Click her profile to connect with her.

‘Love Island’ isn’t real, but it might reflect the way we date

For millions of viewers, “Love Island” has been a summer obsession – a chance to peek in on a sunny villa full of beautiful singles looking for love. But according to Andrew Selepak, Ph.D., a media professor at the University of Florida, the reality show isn’t really about romance. “The reality of reality TV is that it doesn’t reflect reality,” Selepak said. “These are people who were selected; they were cast just like you would cast a movie or a scripted TV show.” Still, what happens on the island isn’t completely disconnected from real life. The show's format, which is built on snap decisions, physical attraction, and frequent recouplings, mirrors the current dating landscape in unsettling ways. “I think it's reflective of the current culture that young people are experiencing with dating, which is very superficial and doesn't lead to long-term lasting relationships because a long-term lasting relationship can't be based on superficial qualities,” Selepak said. Selepak compares “Love Island” to “TV Tinder.” Much like on dating apps, contestants size each other up based on looks and vibes rather than values or long-term compatibility. And while the show promotes the idea of finding “the one,” the numbers tell a different story. “It’s like less than 12% of the couples actually remain together for any period of time,” Selepak said. “At some point, you would think people would realize it’s fake.” However, viewers continue to watch, and contestants continue to sign up. Why? Because the point isn't necessarily to find love. It's about visibility, likes and followers. “This is where you have the social media aspect playing in, where people are looking to become influencers and to gain fame, notoriety, likes and follows,” Selepak said. “The people who are on the shows, these are people who intentionally have gone out and said, 'I want my dirty laundry to be on TV.’ There's a narcissistic aspect of wanting to be on a show like that. Most people, I think, would be hesitant to tell their deep, dark secrets – or tell the things about themselves that they would normally only share with a select few – to a large audience.” For contestants, this often means performing love rather than experiencing it – a behavior that echoes real-world dating on social media. For audiences, “Love Island” gives them the dissatisfaction of watching beautiful people experience the same dating struggles they do. In the end, “Love Island” may not teach us how to find lasting love, but it might explain why so many people are struggling to.

Expert Perspective: Race and Representation Take Center Stage in Texas’ Democratic U.S. Senate Primary

As Texas Democrats head toward a competitive 2026 U.S. Senate primary, conversations about race and representation are playing a visible role in the campaign. In a recent Spectrum News segment, Baylor University political analyst Dr. Mia Moody discusses how racial identity, voter perceptions, and candidate messaging are influencing the dynamics of the race. Mia Moody, Ph.D., is a professor and former chair of the Department of Journalism, Public Relations, and New Media in the Baylor University College of Arts & Sciences. She is a nationally recognized expert on mass media and image repair, intersectionality, critical race theory, and the media framing of women and people of color. View her profile The story explores how candidates are navigating issues of representation within a diverse Democratic electorate, and how those discussions could impact turnout and coalition-building ahead of the primary. Watch the full report for expert insight into how race is shaping one of Texas’ most closely watched political contests. The full story is available below:

Experts in the Media: What You Need to Know About Medication Safety and Everyday Health

From medication safety to seasonal illness prevention, pharmacists are often the most accessible, and overlooked,  healthcare professionals in our communities. In a recent segment on NBC, Dr. Shannon Yarosz breaks down common misconceptions about prescriptions, explains how drug interactions really work, and shares practical advice patients can use immediately to better manage their health. Dr. Shannon Yarosz is an Assistant Professor of Pharmacy Practice. Prior to joining the faculty at Cedarville University, served in multiple pharmacy roles. Her career reflects a deep commitment to patient care with experience in pediatrics, community pharmacy practice, and clinical healthcare services. As healthcare systems face growing pressure and patients navigate increasingly complex medication regimens, pharmacists are playing a larger role than ever before. This discussion highlights why their expertise matters, from helping patients avoid costly mistakes to providing front-line guidance on everyday health concerns. When should I stop taking antibiotics? Is it ok to stop when I begin feeling better? This question and several others were addressed in this week's Ask the Pharmacist segment on WDTN TV in Dayton, Ohio. Looking to know more or connect with Dr. Shannon Yarosz? Simply contact: Mark D. Weinstein Executive Director of Public Relations Cedarville University mweinstein@cedarville.edu